The Memoir

On Tiptoes
Between Life and Death

Art Therapy in Hospice and Vegetative State Wards — a professional and human journey

by Michela Rolandi

This memoir was born from years of work in wards where life meets its boundary. Ten Hospice rooms, seven Vegetative State rooms: each with a story, a face, a gesture.

It is addressed to healthcare professionals and anyone seeking to understand how the creative process can accompany end-of-life care with gentleness, respect, and beauty.

Chapters

  1. 01

    Introduction

    Why this book, why work with the dying, and the personal story that brought me here.

  2. 02

    The Hospice: entering on tiptoe

    What a hospice is, who its patients are, and how art therapy finds its place in such a delicate setting.

  3. 03

    Ten inhabited rooms

    The diary of a typical day in hospice. Ten rooms, ten stories, ten different ways of being in the world.

  4. 04

    Gemma: art as the transformation of pain

    A fifty-year-old woman, an advanced carcinoma, and the discovery of a talent she never knew she had.

  5. 05

    Francesco: the inner dialogue

    A self-taught painter of eighty-eight, an anarchic spirit, and a final painting that closes a chapter of life.

  6. 06

    Nunzia: filling the void

    A lucid and talkative woman who, through mark-making, color, and dedications, fights the fear of leaving her children alone.

  7. 07

    The Vegetative State: attending to the small things

    Seven rooms, minimal signals, and the art of perceiving what the body tells us when words are no longer there.

  8. 08

    Giacomo, Mario, Amerigo

    Three men, three stories of motionless bodies and inner worlds that ask to be reached.

  9. 09

    Those who remain: the caregivers

    Sara, Antonio, Luisa, and the Tuesday women. Stories of those who live alongside illness and find in art a space to breathe.

  10. 10

    The team: being part of a whole

    Working with the multidisciplinary team, the challenges of integration, and proposals for building cohesion and mutual listening.

  11. 11

    Materials and spaces

    From pastels to clay, from music to reinvented medical supplies: the tools of art therapy practice.

  12. 12

    Conclusions

    Reflections on the meaning of accompanying the end of life, on our society, and on the importance of learning to let go.